This annotated bibliography provides information on published papers on measures for and experiences of social power and participation in health, health systems and social determinants of health internationally, through a desk search/review of largely but not exclusively peer reviewed published literature and reviews. It includes information on country experiences on: the contexts, models, measures and resources applied; the mechanisms, methods and tools used for community participation and decision making at the level of primary care and local governance; the enabling factors and challenges faced and the process and health outcomes/impacts measured; and learning on what has supported or blocked promising practice.
The Scottish Government sets itself a set of broad outcomes such as making Scotland healthier, safer and fairer. The The Community Empowerment (Scotland) Act 2015 requires Scottish Ministers to consult the people of Scotland on these outcomes and report on how it is meeting these outcomes. For example, By making a participation request, a community body can start a formal discussion with public bodies about how to improve local outcomes. Public bodies must agree to the request or give good reason why not. The Act makes Community Planning Partnerships (CPPs) a legal requirement and requires them to involve community organisations at all stages of community planning, with tackling inequalities a specific focus.
Young people's participation in decision making that affects them is increasingly recognised and valued as a right. Youth participation in mental health settings is fundamental to service design and delivery, and is beneficial for the young people as well as the organisation. Headspace recognises the many benefits of youth participation with its national and local youth participation initiatives. In 2013, headspace Gosford in Australia established its current youth participation model, called the Youth Alliance (YA), consisting of 12 young people. These young people contribute ideas and opinions around service design and delivery, and participate in a range of activities. This paper presents the findings of a focus group conducted with the YA immediately following recruitment. All 12 young people participated in a two hour focus group which sought to identify the key reasons these young people joined the YA, and what they hope to achieve in their capacity of YA consultants.